Baby loss awareness week – Mothering A Rainbow

Jason Phillips 💙

You are in my thoughts every hour of every day. I wish I remembered what it felt like holding you, I wish I remembered what you smelt like. I wish I knew what colour eyes you had or whether you had any birth marks. I wish I had taken more pictures, I wish I had one of us. I wish I had dressed you in one of those outfits I spent hours deciding on but would have been far too big for your tiny 3lbs 6ozs body. I wish I had a cast of your hands and toes to hold when I miss you a little too much. I wish you got to meet your little sister and I was able to have pictures of you both together, of our family complete. We will never be complete with you gone. I wish she knew her big brother is the best big brother ever.

Most of all I wish I didnt know about baby loss awareness week or that babies die even though everything seems fine because that would mean you were still here.

I would give my own life in a heartbeat so that you could live yours.

Wow what a whirlwind week of emotions it has been. It has been amazing to see so many people raising awareness as much as they possibly can, especially when some of those people are ones who have supported me and welcomed me talking about Jason.

This week there has been so much discussion around baby loss, in parliment, social media, radio and on TV and it has been a long time coming! There is still so much taboo around baby loss however I do still feel like most of the conversation has been around stillbirth and miscarraige and once again neonatal loss is widely overlooked. Jason lived, he was not stillborn and there is still so many unanswered questions about how babies suddenly die after being born alive that isnt researched and I feel strongly that the baby loss community can be very split in terms of how babies die.

Ive not felt like I can join in with this year blaw as much as I would have liked, ive been amazingly busy with work and life in general which has meant my mental health has taken quite a hit; which has meant grief has come along for the ride and I have found myself feeling much lower than usual. As a result I have had to take a step back and think about what is important for me and my family at this time and knowing I am going through another wave of guilt and grief is enough without trying to support everyone else too.

Tonight is #waveoflight and I have lit my candle for Jason, my tiny little twinny bean and all the other babies who sadly are no longer with us.