Seven years since I last held you.
Seven years since I saw those tiny little hands.
Seven years since I had to say Goodbye.
Seven years of missing you.
Seven years of hurting.
Seven years of what ifs.
Seven years of why me.
I can’t imagine our lives with a 7 year old. I guess that’s what hurts the most; that we never got to have a life with him in it. A day with him was never enough but a day was all we got.
Jason’s birthday came and went in a flash. It was a normal Tuesday, school/work and hardly any time to think about the day itself. People asked me how I was, I was fine I suppose. The days that followed seemed harder. I’m a huge believer that the build up is always worse, the days that led to Jason’s birthday haunt me. I should have known, I could have done more, I should have been able to stop this from happening. So yeah, the actual day felt like any other. We had a cake and told Ellie it was Jason’s birthday cake which she was thrilled about and then the usual routine kept us busy.
The days that followed were hard on Ellie, I’ve never sheltered her from Jason’s death – of course she doesn’t know the full extent of what happened but she does know he’s dead and it’s a tough thing for a 5 year old to comprehend. Her teacher brought her new baby in to school to meet everyone and usually Ellie would have been all over her but she looked at the baby and just said it reminded her of baby Jason. She has talked to her new teacher and her amazing TA about him and why she got upset that day. She asked me if he could just come and play with her, just for his birthday. It breaks my heart to know she grieves in her own way for a sibling she never got to see.
They’ve also been learning the Easter story at school which has confused her a little. Why shouldn’t her big brother be able to come back to life if a man who lived thousands of years ago was able to do it. Why can’t we put his body in a cave and wait for the angel to revive him. Why was Jesus special enough to be allowed to live again and not Jason? These are just some of the questions we’ve had to try and answer for her. I’m not a Christian, I never was and I love that she’s so inquisitive when it comes to religion but jeez they were tough! I don’t believe in God – if there is some almighty being then making me live without my child is pretty crappy of them don’t you think?
Thankfully, Ellie has been more settled again this weekend. Jason’s birthday is a memory and in the eyes of a child she’s done with it all. She does still have moments where she talks about him and I will always encourage her to do so, he is her big brother, he is my son and he will always be apart of our family.
Category: Jason
Empty Door
Our door remains empty, on the first day of school.
No awkward photographs.
No fussing over a clean uniform.
The first day of school but you are missing.
The first day of school.
Jason should be starting Reception this year. I should be rushing around buying his new shoes, the uniform I had forgotten about and preparing him for what school is like.
Our lives would be filled with excitement, our little boy growing up so fast.
School starts and the internet is flooded with those first day photos, standing so smartly in the new, clean uniform in front of the door. Their book bags, water bottles, lunch boxes and PE kit piled in to their hands, promising yourself you won’t cry but knowing you will when they step through the doorway in to this whole new world.
This year, instead of watching Jason on his first day of school, I will be working in a reception class. I’ll be right there in the thick of it, watching the parents on the playground, the children excited/nervous for their first day. It’s going to be so hard knowing I should be one of them. Oh how I wish I was one of them.
When an adult dies, you grieve for the memories and the lives you shared. When a baby or a child dies, you grieve for all the memories you don’t get to have. Everything, for the rest of our lives, is tinged with sadness, there is always someone missing. I don’t know how Jason’s first day at school would have gone, due to his Down Syndrome and other health issues I don’t even know if he’d have been able to go to a mainstream school or whether he’d have needed extra support. It’s hard being a mother and not knowing your child. Not having the chance to know them or even be able to imagine the child they would be.
A huge milestone that has been taken away from us again.
To all those parents who are struggling at the beginning of the school year, I am with you, I hear you and I am there for you.
Primary School Offer Day
In an ideal world I’d have been one of those nervous parents waiting to find out what school my boy had gotten in to. In an ideal world he’d have been accepted to the primary school where I work! In an ideal world I’d already have his uniform, or parts of it in preparation and be excitedly making him try it on for pictures. In an ideal world we probably would have had to put Jason in to the special needs school because that is where he’d have the support he needed. In a less ideal world we’d have to settle or appeal the decision.
I would give so much to be able to take that less ideal world. To be one of those excired/nervous parents dying to know.
Things like this shouldn’t cause me grief, I probably wouldn’t even acknowledge it if I didn’t work in a school however when September comes and I see all those parents and little reception newbies on their first day I know it should be me there too. I will see their anxiousness and wonder whether I’d have felt the same or whether we would both be ready for him to start school. I feel like Ellie is ready to start nursery so I know she will be fine but I will never know what Jason would have been like.
My life with him seems further and further away with every milestone that we don’t hit together. I’ve missed his first words, first steps, first hug, first smile and now ill be missing his first day at school too.
Of cause I miss him constantly and the ache I have to have both of my children here is never ending but sometimes days are harder to deal with than others and there are some days where you just can’t help but think how fucking cruel the world is.
Always One Missing
Wow, as always, the final few days of March were horrendous. I have said for a while now that for me, the build up to an anniversary is always harder than the day. This has been the case for all of Jason’s birthdays. I find the days leading to his birth/death hit me far harder because I carry so much guilt with those days; what if I’d have gotten checked out earlier, what if i’d have known I was in labour, what if I could have done something and I didn’t. Those who have lost a baby/child will understand what I mean by all this. The guilt seems harder every year too, i force myself (more like torture myself) to read past status’ complaining of feeling tired, having swollen ankles, feeling sick, I can’t help myself. I only ever activate my old facebook account on the build up to his birthday, knowing I will see these past status’ and knowing it will feel like a knife to the heart the closer it gets to his birthday.
This year as many of you know, Jason should have been turning 4. He should have been having a party with our family, friends, possibly even some nursery friends and I should have been knee deep in cake, balloons and presents! I wasn’t. I went to work, I pretended I was fine, I sat through a meeting about the mental health and wellbeing of our pupils which then turned into a discussion on a bereavement course our SENCO had recently been on and I just sat there. I wanted to storm out, I wanted to sob, I wanted to scream that Jason wasn’t just a bereavement, he was/is my Son. I didn’t do anything of those things, I welled up at times but composed myself. I decided I was going to ask to leave early, only half an hour so I could see Ellie. I needed to be with her. While I was waiting to speak to my boss, a male teacher got a call, his wife was in labour. I knew it was going to happen. I knew it would be that day. I just knew it. I felt like I was right back in the thick of my grief, the first days where the world kept on turning, everyone’s lives carried on but mine seemed to stop. I felt like I was watching everything in slow motion and it hurt. I did manage to finish early and in the end spent a really nice afternoon with Ellie, in our favourite garden, where I have taken her every year since she was born on Jason’s birthday.
A little garden in Ironbridge, with beautiful flowers, a little wooden park and a cafe that sells the most amazing cake which I treated Ellie too because I couldn’t treat her brother.
The weekend was pretty okay, we took Ellie to Chester Zoo, another tradition we have started since Jason was born. We have gone every year to celebrate his birthday as close to the date as we can. We had such an amazing day, Ellie was really well behaved and walked around most of the day. We walked 6 miles around the zoo, saw loads of animals and thought about Jason all day.
I was gutted that the elephants weren’t out of their house due to illness, I always feel closer to Jason when I see an elephant. Ellie loved watching the baby animals, her favourites being the Meerkats and I enjoyed seeing the animals we have watched on The Secret Life of The Zoo with her. We spent all day there, not getting home until late but it was worth it. Ellie was happy, so we were happy.
Sunday was Mother’s Day. Those mums in our baby loss community know how difficult mothers day is. Regardless of how many children are living, there will always be one missing. I’ll never get a card made at nursery from him. I’ll never have a mothers day hug from him. I’ll never get to spend a mothers day with him. It doesn’t matter how many living children you have, when one is missing it tarnishes the day. I found not acknowledging it helped, I spent the day cleaning, washing, doing our usual Sunday chores. Luke struggled more so I naturally took on the strong role to help make his day seem easier. The Sunday after Jason’s birthday is always difficult for him and this one being Mothers Day made it harder this year. It sucks.
The following day I found the hardest, I couldn’t function. I couldn’t get out of bed. I didn’t want to either. I spent an hour in bed crying, my alarm went off and I just didn’t want the day to start. I didn’t go to work, I couldn’t. My head wasn’t in the right place at all. I felt just like I did when Jason first died, the world was once again moving on and I wasn’t ready to carry on. I needed another day to grieve for what should have been, for the life that was taken away from us and from him. I needed another day to feel sorry for myself because this year felt like more and more people weren’t that bothered. “It was 4 years ago, surely they should have let it go by now” It’s exactly what I would have thought before Jason so in my own mind this is what people would be thinking too. It’s okay. I get it because unless you have held a dead baby, sat and cried looking at their tiny coffin, knowing they are in there and there is nothing you can do to turn back time and make it all better, then of cause you aren’t going to understand.
Of cause, I have had 4 years of practise now at pretending I am okay with how my life is, pretending that his loss hasn’t left a giant hole in my heart where he should be. For the most part I’m not even pretending any more. Life does get easier to manage, you start moving forward because you can’t stay stuck in the same loop forever. Except when you do find yourself with anniversaries, celebrations, it’s hard to give yourself time to readjust and if you are like me, you burn out. I have felt pretty drained all week however already I am feeling that glimpse of happiness return, the anniversary is over and although I NEVER stop thinking about Jason, missing him, loving him, each day becomes easier to carry on as if i’m not broken slightly.
27th March
I can’t help but wonder whether that day was when everything started going wrong.
Illness had struck, I worked in a nursery at the time and the sickness bug had hit the kids. The day I was due to finish for my maternity I ended up having off as I was being sick and I felt so bad for not working my last day.
I hadn’t thought much of being sick, other than being grateful I didn’t suffer from morning sickness as I just wouldn’t have coped. I’m not a good sick person at all. I spent the day on the sofa, wrapped up in a blanket feeling baby kicks (or so I thought… More like flutters with him being so tiny!) and generally feeling dreadful. I had a constant smell of cigarette smoke around me which was odd as I have never smoked and no one was near the house. To this day I wonder whether someone was trying to tell me something was wrong. That in just 2 days my baby would be gone.
I have since learnt that being sick can be a sign of labour starting and I wonder whether I had signs but was too naive to recognise them. I had just turned 35 weeks pregnant and was innocent in thinking I had 5 weeks to go before we’d meet him. I was unaware that babies were born so early and it’s not something midwives tell you is a possibility either. I feel that the information you are given is just what they think you want to hear not what you should actually know.
The next day I felt perfectly fine, I’d cancelled plans with friends because I had been ill but actually thought about uncancelling due to how much better I felt. I’d taken a picture of my growing bump in a summery dress, we took a stroll to Tesco for pizza as it was what “baby wanted” and while walking around I had started to feel some pains in my tummy that felt a bit like constipation pains… Of cause I know now that they weren’t at all and I should have taken them more seriously and got checked out. Maybe if I had have been checked we’d have been able to save him, we’d have had a chance of saving him.
I think every grieving parent goes through life finding ways to blame themselves for the loss of their baby/child. Those “what ifs” haunt me 4 years later and they always will. Not a day goes by where I don’t feel like I should have known something was wrong and done something.
Mothering A Rainbow 