Posted in A Life Without Down Syndrome, Aching Arms, baby loss, down syndrome, Extra Chromosome, grief, motherhood, stillbirth, trisomy 21, Uncategorized, wdsd17, World Down Syndrome Day

World Down Syndrome Day

Happy WDSD to you all.

For those who dont know World Down Syndrome day happens on 21st March every year. This is because of the triplication of the 21st chromosome in a person with DS.

DS is very important to me. I am lucky enough to have a younger brother who has DS and I couldnt imagine my life without out. He has made me the person I am because of who he is. I spent my childhood being known to lots of people as Zacks Sister but i didnt mind because to me he was so much more special. Yes he is special but not in the way you might think. His DS doesnt make him special, its just him and he has never let his DS stop him, if anything he has achieved more because of it. I am so proud of him and the young man he has become and I will continue to be proud of him. 

My Son also had DS but we didnt know until his post mortem results. I remember worrying that I couldnt conceive and ive always said if I was unable to have my own children I would adopt a child with DS. Knowing Jason had DS makes losing him so much harder. He would have achieved so much I just know, like my brother his DS wouldn’t have stopped him. I spend a lot of my time comparing what Ellie can do to what I think Jason could be doing now, Id be planning his 2nd birthday now but instead all I can do is write about him and celebrate the fact that he too was lucky enough to have Down Syndrome ❤

Posted in A Life Without Down Syndrome, baby loss, down syndrome, Extra Chromosome, grief, motherhood, Pregnancy, pregnancy after loss, pregnancy and infant loss, Pregnancy Loss, trisomy 21, Uncategorized

A World Without Down Syndrome?

October is Down Syndrome Awareness Month and to me is pretty important. As you may know October is also Pregnancy and Infant Loss Awareness Month and for me, both go hand in hand.
Continue reading “A World Without Down Syndrome?”